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Showing posts with label Healing. Show all posts
Showing posts with label Healing. Show all posts

Thursday, January 20, 2011

TEN THINGS

Ten things that made a difference to me while I battled with Cancer

1.) The cards.  Each and every card that I received during the time that I was being treated for cancer brought a smile to my face.  It did not matter if the sender wrote a novel or one line, it was truly the thought that mattered.  I still have each of those cards stored in several boxes and bags.

2.) The phone messages.  I was often unable or not interested in speaking on the phone and many people respected that and would leave me kind and thoughtful messages that did not require a call back.

3.) The hugs.  Having cancer makes you feel different from everyone else and no matter how much support you have around you, you still often feel very lonely.  Receiving a hug was a gentle reminder that I wasn't alone.

4.) Being alone.  From the time I was diagnosed in October until March when I spent time in a hospital in Greenwich, Connecticut I was almost never alone.  I had friends and family, Doctors and Nurses everywhere I turned.  That hospital stay actually gave me the first chance to be by myself for a bit.  And being alone every now and again made me feel "normal".  How many adults do you know that are never alone?

5.) "Normal" conversations.  People who would talk to me about things other than my cancer and my treatments.  I certainly wanted to talk about those things at times but it was so important to me to hear about the "non" cancer world too.

6.) The books.  I have two shelves filled with books that people either gave me or recommended to me.  Many of them have to do with cancer and healing but there are also poetry books, prayer books, fiction books, and biographies.  I love to read and each one of those gifts provided me with that outlet as well as a connection to the giver.

7.) The movie Notting Hill.  This movie was loaned to me by a dear friend and I lost count after probably the 15th viewing.  It was funny, and sad, and funny.  It made me smile over and over again.

8.) Gatorade.  Many people brought me many bottles of gatorade.  Thank you.  A person can only drink so much water and when you are constantly trying to maintain hydration something a little different is amazing!

9.) Questions.  Lots of people were afraid to ask me about my disease, my treatment, or my prognosis.  At the same time many people were able to ask me those questions.  While I didn't always want to talk about it, nine times out of ten it was a relief to be able to talk about it.  To answer other people's questions provided me with a small sense of control of the situation.  It cemented for me that I did know what was going on with my body and medications.

10.)  Continued support.  My journey with cancer is not over.  I may have clean scans and the knowledge that there isn't any cancer activity to be seen in my body but the nightmare that is a cancer diagnosis doesn't just disappear when you get a clean scan.  Visiting the doctor is still scary, bloodwork is still hard to obtain (my veins are shot from chemo), and not a day goes by that I don't think about all that I have been through.  The continued support from friends and family is so important in whatever form it takes.

Tuesday, November 16, 2010

Insomia, Anxiety, Control

Tomorrow I leave for Bethesda and my 4th check in with my transplant team seen moving back to Massachusetts in July.  To be honest I haven't been sleeping all that well, my anxiety levels are up, and I seem to be trying to find ways to control everything in sight.  Sorry to my family for that last one!  The truth of it all is though, that I (intellectually speaking) have nothing to be afraid of...no new symptoms, only good bloodwork, feeling great, lots of energy (ran a mile yesterday, plan on another one today), and a medical team that seems to think I'm doing pretty darn well.  It's difficult though to remember that just because the other shoe has dropped over and over again in the past, that is not a predictor of it dropping in the future.  I am living each day one day at a time and am grateful for each of these days, for every moment that I have to live and give. 

My lovely and sweet husband often jokes about my time "not working" with the image of me laying on the couch eating bonbons all day!  I will admit that I've embraced these jokes and even encourage them...laughing is too much fun not too.  But the reality is (and he knows this) that I am hardly ever lounging on the couch and am not sure I'd know a bonbon if someone shoved it in my mouth!  I am taking this time "not working" to work at healing and growing in a variety of ways.  I've connected with several patients and their families who are dealing with similar as well as different diagnoses to the one that I received.  I am serving as a Consumer Reviewer on a panel made up of Doctors, Scientists, and Lay People (who have experienced cancer) to review, critique, and ultimately vote on funding for cancer related medical research proposals.  I am attempting to blog regularly as it not only seems to interest my readers but it helps me to process.  I am on twitter and facebook...probably too often...but learn of events and people that I want to connect with almost everyday.  And did I mention keeping up with the life of a 3 year old in preschool (this includes bakesales, school pictures, lunches, etc...and she only goes 2 days a week)!  Additionally, instead of the unknown bonbon I am spending a decent amount of time learning about nutrition and trying to put good and healthy things into my body.  Oh yeah, and the holidays are arriving...Christmas shopping anyone!!

This not working thing is more work than I ever imagined and I love every minute!  Now for those of you who are currently thinking "I hope she isn't overdoing it" not to worry...I still take the occasional nap and make time for yoga and reading that is totally unrelated to any of the above!  In short, I am taking care of my body and mind to the very best of my ability. 

I hope that you all are too!

Tuesday, September 28, 2010

Yoga...Can you become addicted?!

Yoga has been recommended to me by friends, doctors, nurses, family members, basically anyone who has been following any of my last year. Its been about a month now that I've been going to Yoga classes at the Y and realized that I have totally become addicted yesterday when I went to a class at 11am then right before bed did a 20 minute class that I downloaded from the website www.yogadownload.com, and then set my alarm to get up early so I could work on a series of poses from a Yoga magazine that I recently purchased in hopes of working up to the Lotus position. I now can't wait to do my bedtime routine tonight, a morning routine tomorrow morning, and a class at the Y. I think I have a problem! But what a problem to have.

It is truly amazing to have the opportunity to build my body back to health. After this year I have a much better understanding of how my body works and what it needs in each moment. I love that I now have the chance to create a physical body from the ground up. Yoga is helping with that. So is the swimming but to be honest its the Yoga that I miss on the days that there isn't a class.

Basically, what I want to say is if you haven't tried it, do. And if you have tried it but didn't love it, try it again. And if you think I'm simply turning into a nut (which is, of course, entirely possible) take a look at what you do to feel good and really embrace it, love what you do, it can only make you happy and healthy.

Monday, August 16, 2010

Sunrise on Nantasket Beach

Yesterday morning, like most mornings I was awake well before 5am.  I lay in bed trying to sleep for quite a while before deciding, as I do most mornings that this is futile and I should just get up.  Yesterday was a little different though, I decided to go for a walk down by the beach.  This isn't something that I can do during the day without boatloads of sunscreen, a large hat and long sleeves (needless to say, this gets hot).  But, at 5am it is still slightly dark and not all that hot...perfect for walking by the beach.  At the start of my walk I met a man with his new puppy who had just had her first walk on the beach and was wildly excited about it.  Honestly, if it wouldn't have been totally ridiculous I might of been jumping up and down and shaking my tail in exciting just as this puppy was doing.  Not only was this my first walk at the beach since last fall but it is amazing to remember that I am lucky to have the opportunity to get up everyday no matter how early it may be.  But, folks, the best is yet to come...I was just in time for the perfect sunrise.  If you haven't been to the sunrise in a while, or ever, please take the time to do so.  It changes you or at the very least it changes your day.  If you can't get to the sunrise anytime soon please enjoy the picture of what I saw and have posted here.  And remember to appreciate the little things, like a puppy at her first sunrise.

Friday, August 13, 2010

Healing and Control

It has not yet been a year since I was diagnosed with Primary Mediastinal B-Cell Lymphoma (a form of Non-Hodgkins Lymphoma.  It feels like its been a decade.  In January of this year we began using the site Caring Bridge to share with our friends and family my progress, setbacks, and journey (which continues) through cancer.  There was and continues to be much to be said and shared but I've decided to move from Caring Bridge to this blog.  It is a control decision for me.  Anyone who has experienced cancer closely knows that one of the hardest parts is the loss of control in almost all parts of your life.  For me I am now choosing to write about the healing and growing part of this lifelong journey that I am on, in a different forum.  Basically, what I am trying to say is we began using Caring Bridge so that we could easily keep friends and family updated on my medical condition as well as share some funny stories along the way.  Caring Bridge was what we used because I was very sick.  I am not cured yet but I am much better than I was and although I have a gazillion pills to take every day I am here every day to take them.  This blog is about healing and about gaining back control.  I hope that you will enjoy, both new readers as well as those of you who have followed the Caring Bridge posts.